Dad given two years to live after cold fingers turn out to be deadly rare condition

Author: Hannah Cottrell

Published: Dec, 16 2024 10:16

The rare autoimmune condition causes Scott Nell’s skin to harden and thicken. A dad who was given less than two years to live in March 2022 due to a rare health phenomenon which slowly hardens his skin has said he has “plenty” of life left. Scott Nell, 47, from Houghton-le-Spring, County Durham, requires chemotherapy and 250 pills per week to survive.

Image Credit: The Independent [Scott feels he has ‘plenty left’ after exceeding his life expectancy (Collect/PA Real Life)]

Scott was a healthy individual when he experienced unusual cold sensations in his fingers in November 2017, describing his digits as white as paper, before he later struggled to breathe and found his airwaves were “shutting off” if he leant to one side.

Image Credit: The Independent [Scott was diagnosed with diffuse cutaneous systemic sclerosis (Collect/PA Real Life)]

After undergoing tests and seeing specialists, the garden designer was diagnosed with diffuse cutaneous systemic sclerosis, a type of scleroderma, a rare autoimmune condition which causes the skin to harden and thicken, can lead to serious organ problems and can be life-threatening.

Image Credit: The Independent [Scott first noticed unusual sensations in his fingers (Collect/PA Real Life)]

In March 2018, he underwent chemotherapy treatment every month for a year – now reduced to once every six months – as a way to help soften the skin and tissue around his internal organs. But Scott now faces issues with his lung function and pain due to the muscle-wasting nature of the condition.

Image Credit: The Independent [Scott found he was ‘excessively tired’ (Collect/PA Real Life)]

He was given less than two years to live in March 2022 but has exceeded this time frame and he now wants to raise awareness of the disease and urge others to push for early diagnoses so they can live longer and spend more time with their families – which for Scott is his wife, Charlotte, 48, his 15-year-old daughter Tiffany and his step-sons.

Image Credit: The Independent [Dad who takes 250 tablets each week and lives on oxygen due to rare health phenomenon exceeds life expectancy]

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Dad given two years to live after cold fingers turn out to be deadly rare condition

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