Tragic teen, 18, dies after being ‘trapped in the body of a child’ by extremely rare disease that left her unable to age AN 18-year-old girl has died after living with an extremely rare disease that left her trapped in the body of a child.
The disease is so rare that there have only been 18 known cases of the disease worldwide as of 2020, according to the Journal of Medical Genetics.Elena’s mum Andreea updated her 220,000 followers on Instagram on her condition on Friday as she spent time in the hospital.
Elena’s mother Andreea documented her battle against the disease on social media, and her followers were devastated by the news.
Elena weighed very little and struggled to grow, and many of her organs did not function properly due to complications caused by the disease.
But this did not stop Elena from living life to the fullest and she was renowned for her infectious spirit and her love for life, music and creativity.
