“Patient advocation and standing up against medical gaslighting is something I am so passionate about as I have experienced a lot of medical gaslighting since first getting ill. “I cannot wait to see where being an EBE takes me!".
Dani wrote: "My hobbies nowadays are much more introverted than before I got ill and that took a lot of time to come to terms with, and so I have a lot of spare time on my hands at home.
“I wanted to be an EBE because I want do something meaningful - and what is more meaningful than volunteering for a charity that helps promote patient advocation?.
An inquest heard how Dani was wearing hospital clothing that matched the description of a missing woman.
She opened up about her struggles with the disease previously and was one of a number of ‘Experts by Experience’ (EBEs) the charity used to improve patient care.
